Respect Dignity , Raising awareness , Living with Dementia

Male , 63

Profile

Male 62
I am a person with early onset Lewy Body Dementia, and I like to help others with this illness as and when possible.
I am also a member of other support groups, where we try to support those who have just been diagnosed with this illness, and later find that they have many questions to ask, and no one to turn to when they need it the most.
I am also a Dignity Champion, as I feel that we must give as much support as possible to everyone on the dementia journey, no matter who they are.

Life Experiences in Dementia

The understanding of what it is like to live with dementia, and cope with all the problems and pit falls we encounter on this journey.
I was involved with the National Dementia Strategy from the beginning, and I am still involved at a local level, and I firmly believe that this strategy must succeed for the benefit of all on this dementia journey no matter who they are.

Why Mentor in Horsesmouth

I know how difficult things can be and would like to share my limited experiences and knowledge of this illness in the hope that I can help others while I am able to do it.
I was also given a lot of support in the beginning and I would like to re pay this by helping others in the same position.
I also think that we need to raise awareness and re-educate people, so that people understand the illness better than they do today, and remove the myths that exist, such as I have heard people ask it dementia is contagious

I am motivated because I wish to help others who are desperate for advice about dementia and where to look for information, concerning the various types of illness, and where they can get support. I know that many people are diagnosed these days, but they are not given all the information required nor are they told where they can get it.

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